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"Menstrual Migraines / Mirena / Hysterectomy does it work?"

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tammyseattle Click to EMail tammyseattleClick to check IP address of the poster Apr-13-04, 07:10 PM (CMT)
"Menstrual Migraines / Mirena / Hysterectomy does it work?"
Hi Everyone, I'm rather new to this forum. I'm about to try Mirena which is an IUD hormone replacement to hopefully stop my PMS and menstrual migraines.

I have headaches approximately 3 weeks out of a month with one severe migraine week leading up to my cycle. I've tried everthing in the past 4 years and the migraines just keep getting worse as I age. I'm 38 years old and have had a tubeligation approximately 14 years ago.

My migraines began about 4 years ago. I take botox injections every 3 months. I take torredol injections monthly, I've done the 3-4 hour I V's and I've tried the pill, vitamins, cutting out foods, and all oral presription migraine meds.

I'm about to try natural progesterone cream which is supposed to rid you of all all PMS symptoms including migraines and balance out all hormones.

If this last method of treatment doesn't work, I am going to have a full hysterectomy. It's really hard to live life when you can't function as a normal individual.

Does anyone else out there have a simular situation? Write and tell me what's worked for you. Also I'd be interested to know if getting a full hysterectomy has helped anyone with hormone ups and downs or migraines.

Thanks, Tammy homefrontinc@msn.com

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 Table of contents

RE: Menstrual Migraines / Mirena /..., 30yrsofheadache, Apr-14-04, (1)
RE: Menstrual Migraines / Mirena /..., the5votes, Apr-14-04, (2)
RE: Menstrual Migraines / Mirena /..., LaneysMom, Apr-14-04, (3)
RE: Menstrual Migraines / Mirena /..., migrainewoman, Apr-14-04, (4)
RE: Menstrual Migraines / Mirena /..., donjonrn61, Apr-14-04, (5)
RE: Menstrual Migraines / Mirena /..., Cindy**W, Apr-14-04, (6)
RE: Menstrual Migraines / Mirena /..., tammyseattle, Apr-16-04, (7)
RE: Menstrual Migraines / Mirena /..., LaneysMom, Apr-16-04, (8)
RE: Menstrual Migraines / Mirena /..., tammyseattle, Apr-16-04, (10)
RE: Menstrual Migraines / Mirena /..., LaneysMom, Apr-16-04, (12)
RE: Menstrual Migraines / Mirena /..., bridesmaid82, Apr-19-04, (17)
RE: Menstrual Migraines / Mirena /..., KMW, Apr-16-04, (9)
RE: Menstrual Migraines / Mirena /..., tammyseattle, Apr-16-04, (11)
RE: Menstrual Migraines / Mirena /..., ExportMgr, Apr-16-04, (13)
RE: Menstrual Migraines / Mirena /..., MOM OF 6, Apr-16-04, (14)
RE: Menstrual Migraines / Mirena /..., genxgirl, Apr-17-04, (15)
RE: Menstrual Migraines / Mirena /..., kathy, Apr-17-04, (16)

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30yrsofheadache Click to EMail 30yrsofheadacheClick to check IP address of the poster Apr-14-04, 03:29 AM (CMT)
1. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Tammy, I thought about that option, too. But after doing a lot of research, I found that many women's mig. gets worse after a hysterectomy. I am not willing to take that chance. You have a much better chance of them improving after menopause.

I have the same pattern as you, but lately only have 10-15 days between periods.I know some women have had good results with the progesterone cream, and some havent.

Nothing seems to work for everyone, so you have to decide for yourself! I will be interested to hear what happens with the cream, please let us know.
Hugs, Cindy

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the5votes Click to EMail the5votesClick to check IP address of the poster Apr-14-04, 06:04 AM (CMT)
2. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Tammy,

you should search the past posts on this site for comments and info on the cream. it has been discussed quite a lot.

I have very severe menstrual mig's too. I'm 42, so don't think much is going to happen in the near future to change this.

one thing that really helped the intensity of my migs was to eliminate caffiene from my diet.

when we get older, there is a much stronger connection between our hormones and how caffiene affects us.

when my dr. told me this, I literally rolled my eyes and sighed right in front of her. she said, "just try it for one month, what do you have to lose?"

I was not a big caffiene consumer, but I eliminated my diet coke and the rich chocolate desserts I would sometimes enjoy.

Bottom line: I have not had a migraine with vomiting since. and it's been 2 yrs.

This, of course, is not the case for everyone. But, "hey, what do you have to lose?" (smile!)

My menstrual migs used to put me in a dark bedroom with a bucket for 24 hrs. Not any more. They still hurt, of course, but nothing near the intensity of pain I was having.

The abortive I take has caffiene in it - but because my body is free of caffiene all the time now, the abortive can work so much better when I take it.

Welcome to this website. I hope you are able to share more of what you have learned with us, and that others can give you helpful advice too.

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LaneysMom Click to EMail LaneysMomClick to view user profileClick to check IP address of the poster Apr-14-04, 08:56 AM (CMT)
3. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Tammy, I also suffer from ovulation and menstrual migraines. I can't take any hormonal form of bcp either. I use the natural prescription strength progesterone cream and my local pharmacy compounds it for me. (10% strength) It was working FABULOUSLY for me for 1.5 years (along with Zoloft and T'max) then just stopped working last month.

I've heard really bad things about getting a hysterectomy to remedy the menstrual migraines. It's such a permanent solution and don't you still have to take some form of hormones once they take out your uterus? The thought of taking hormones makes me shudder.

I have two brain lesions from menstrual migraines, so they really are serious for me. I lose vision, speech and go numb on one side. I'm now trying Frova during ovulation (if I can accurately figure out when that is..my body is all over the place these days) and during menstruation. Hopefully this will help, but it seems these menstrual migraines are just monsters that are resistant to all sorts of treatment.

My best surefire way to treat them is to use a Dilaudid suppository when I get the aura and go lay down. Not a fun way to live.

I wish you the best of luck.

Michelle

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migrainewoman Click to EMail migrainewomanClick to check IP address of the poster Apr-14-04, 09:41 AM (CMT)
4. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Have you tried magnesium? Chack out www.headachepainfree.com to find out dose information. Like everything else here, it has worked for some but not all. It sort of worked for me. I was able to get rid of most of the migraines I had between my periods. For the bad ones I have Relpax now.

I just had a hysterectomy in January. I am also 38. I had uterine cancer though. I was able to keep my ovaries so I don't have to go into early menopause or take hormones.

It is too early for me to say whether this has had any effect on my migraines. I took birth control pills for many years before this so I figure it will be awhile before my body figures out I should be having some sort of cycle.

So far I haven't had any bad migraines, just a couple of mild but annoying ones. I take my relpax before they get bad.

Good luck!

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donjonrn61 Click to EMail donjonrn61Click to view user profileClick to check IP address of the poster Apr-14-04, 11:40 AM (CMT)
5. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
It was explained to me by my migraine specialist that they've found women with menstrual migraines have an imbalance between estrogen and progesterone. The estrogen levels are usually far beyond the progesterone levels, and this is thought to be the culprit.

I was put on Depo Provera injections, which contain only progesterone, to "level out" the imbalance. I've been on this for over a year now and have not had any menstrual migraines since. I used to be practically bedridden for days because of these monsters and the relief is amazing.

I know this doesn't work for everyone, as all our bodies are different. There are many women on this forum who use the progesterone cream instead with very good results.

As for the magnesium, that was strongly recommended to me by my specialist and my neuro. At one point when my magnesium level was checked it was ZERO! I was given IV magnesium sulfate then and started on 400mg of mag each day as a supplement. I think this has made a difference for many people on this forum, also.

Best wishes to you for finding relief soon. - Donna

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Cindy**W Click to EMail Cindy**WClick to view user profileClick to check IP address of the poster Apr-14-04, 08:15 PM (CMT)
6. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
I had a hysterectomy 11 years ago due to Endomitriosis(sp), and a severly prolapsed uterus. Six months after my surgery, my right ovary started hurting. They did an ultrasound and found that I had a large cyst on my ovary. I had surgery to remove the cyst and it happened again. They removed the second cyst, and 3 months later, I had another. At that point they just removed the ovary. 1 year after that, my left ovary started bothering me. It was a different kind of pain though. They did an ultrasound on that one and it was necrotic. It was twisted like and the blood supply had been cut off. It had to be removed also. The doc who did my ovary surgery the second time said that unfortunately with a hysterectomy, many times the ovarys end up having to come out too.

Anyway, I have had migraines since the hysterectomy and they have continued to worsen over the years. I am not trying to scare you or anything, that is just MY experience with hysterectomy. It may actually help with migs in some women, I really don't know.

Does anyone else have any experience with hysto and migs??

Cindy

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tammyseattle Click to EMail tammyseattleClick to check IP address of the poster Apr-16-04, 02:48 AM (CMT)
7. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Thanks Cindy...

You have changed my mind about the hyst! Hopefully the IUD hormone will work and the new diet/herbal remedy that recently posted... Also I'm trying an estrogen cream...

Wow... Just when you think you've tried everything... you meet a great bunch of new people with great ideas... =) I'm glad I found this site... I wish I knew it was here a few years ago!

Take Care & Good Night!
~Tammy~

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LaneysMom Click to EMail LaneysMomClick to view user profileClick to check IP address of the poster Apr-16-04, 09:46 AM (CMT)
8. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Tammy...are you trying an ESTROGEN cream? Or, did you mean progesterone cream?

Michelle

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tammyseattle Click to EMail tammyseattleClick to check IP address of the poster Apr-16-04, 10:47 AM (CMT)
10. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
ooops... yes Michelle, I meant progesterone cream. I ordered it from www.sarati.com I'm hopeing it's going to work!

Talk with you soon, ~Tammy~

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LaneysMom Click to EMail LaneysMomClick to view user profileClick to check IP address of the poster Apr-16-04, 11:10 AM (CMT)
12. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Tammy, PLEASE have your GP PRESCRIBE Progesterone cream for you. The kind you can buy online or OTC arent strong enough for menstrual migraines. The prescription strength comes in 5, 10, or 20% and you'll want to make sure it's soy based, not wild yam based. (I was using 10%, but just ramped up to 20%)

Please feel free to email me at servant2delaney@yahoo.com for more info. Trust me, I've been through this before, so I know what works and what to ask for. Your local pharmacy can compound this for you, and it's so much better than what you can buy online or OTC. Your health insurance should cover the prescription, too.

Good Luck,

Michelle

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bridesmaid82 Click to EMail bridesmaid82Click to view user profileClick to check IP address of the poster Apr-19-04, 08:35 AM (CMT)
17. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
wow i read what your wrote about having a hysterectomy,,,thats when my h/a started too..about 6 months after the surgery...when i tell drs or nurses that they say there is no conncetion to that...i was starting to beleive them...it was nice to read someone else went thru the same as me...do migraines run in your family? my mom had them but only after she stopped having her period, my sister gets them as does her 2 daughters and my youngest son, we all take different meds.good luck and thanks for making me think i am not crazy after all....
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KMW Click to EMail KMWClick to check IP address of the poster Apr-16-04, 09:53 AM (CMT)
9. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
HI! I am 32 and I had a hysterectomy one year ago due to an ovarian tumor. The doctors left me with my left ovary so that it would hopefully produce natural estrogen. It has now quit working and I'm on premarin. Which is just a type of estrogen. I thought that my migraines would get better after the hysterectomy, but because of the horrible hormone imbalances, & believe me--you immediately go into, what the experts call surgical menopause- my migraines became much worse! My husband has become more impatient because he was hoping for a miracle! I don't mean to "burst your bubble", but I just don't want you to put yourself in the same boat with me if you don't have to. At least with your cycle, you know when the migs are coming, or at least I did. Take care! Kenna
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tammyseattle Click to EMail tammyseattleClick to check IP address of the poster Apr-16-04, 10:52 AM (CMT)
11. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Thanks Kenna,

I'm so glad I found this site! I had no idea so many people were in the same situation as me. I'm learning that the hysterectomy is probably not the way to go. I didn't think there was much else I could do about my condition. The doctors made me feel like I was a complainer... I don't think people understand the pain unless they experience it. My mother suffered from migraines and they went away after she had a hysterectomy at age 33.... and she didn't take any hormones at all... However she has suffered from some major depression in her life.

Thanks for sharing your story )
~Tammy~

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ExportMgr Click to EMail ExportMgrClick to check IP address of the poster Apr-16-04, 11:26 AM (CMT)
13. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
Hi -- just wanted to let you know I used the progesterone cream for about 2 months with no effect on my migraines at all. I would say save your money!

Mary

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MOM OF 6 Click to EMail MOM OF 6Click to check IP address of the poster Apr-16-04, 02:08 PM (CMT)
14. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
When I saw the note Donna posted re: Depo-Provera, I just had to comment. I was one of the unlucky few that NEVER stopped bleeding...70 long days...after my infection.

Then my OG/GYN suggested increasing it with another shot. I said "no thanks" and finally stopped my period. My point is that we are all different, or unique.

Karen

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genxgirl Click to EMail genxgirlClick to view user profileClick to check IP address of the poster Apr-17-04, 08:15 AM (CMT)
15. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
A hysterectomy is a drastic choice, but beleive me, I have considered it also, as I get menstrual migraines as well.

Mine were as severe as yours, but I luckily found a med that keeps them at bay (after trying everything under the sun). The med is called bellergal and I will tell you about it if you are interested. But email me with any questions as I have just started working again and I am not here much anymore

I have an IUD and I was offered the mirena type, but since my migs are hormonal, I wanted to get rid of all outside hormone influences, so I went with the older non-hormone secreting type, para-guard (I use it for birth control).

If you have tried being ont he pill and even continuous birth control (taking hormones every week of the month and only having your period once every three months) and it has not worked, I would steer clear of the hormone thing altogether.

As for the hysterectomy, I would never do that unless I knew for a fact that it would decrese/eliminate my migs. It will throw you into an early menopause, and often the migs get worse at the beginning of menopause as the body clears itself of reproduction chemicals.

Hard decision for you. I hope that my opinions have been helpful.

Good luck!
joelle

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kathy Click to EMail kathyClick to view user profileClick to check IP address of the poster Apr-17-04, 10:01 AM (CMT)
16. "RE: Menstrual Migraines / Mirena / Hysterectomy does it work?"
I have hasd my uterus removed and have my left ovary in tact. I had my right ovary removed years ago because of chronic massive cysts. I have had severe endometriosis for 27 years and the docs have tried to get me to give up all my repro organs but I have refused because 50 % of women have a recurrance of endo after because it is now considered an autoimmune disease.

I am happy to have the uterus gone. It hasn't made any difference in my migraines just reduced the pain and no periods. You have to remember you will be in immediate surgical menopause after the surgery. However if your mom got better that puts a different light on the subject. This is a really tough decision for you. I don't know your age but if you are in your 30's remember you will be getting a host of other problems after surgery. HRT is such a scary thing right now.

In the end it is your decision and we will back you. Kathy

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