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lnichols	Aug-30-05, 05:23 AM (CMT)
"topamax and hair loss"
I realize this topic has already been discussed but I want reiterate others concerns regarding the side effect hair loss when taking topamax. I'm still so anxious--I keep waking up at night checking my hair. I've been on this drug for two months. About one month after beginning the medication I thought I noticed that I was losing more hair than usual but I questioned myself. Then this last week I couldn't deny it any longer. When I found this website I felt so relieved to know others had similar experiences and I was not imagining this! I've starting tapering off the topamax. Thanks for having this discussion because without it I don't know that I would have found the validation I needed that indeed this hair loss is quite likely linked to the topamax. Gosh I can hardly wait til my hair thickens again-its already a stressful time in my life so to have this happen now just tips the scale even further! best, Laura
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RE: topamax and hair loss, feelnopain, Aug-30-05, (1) RE: topamax and hair loss, mishkyn, Aug-30-05, (2) RE: topamax and hair loss, LTAYLOR1, Aug-30-05, (3)

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feelnopain	Aug-30-05, 10:29 AM (CMT)
1. "RE: topamax and hair loss"
I had hair loss taking this drug but was willing to give it a try 3 times. This last time I could only tolerate the side effects for 2 months. My hair loss did not happen this time and I was going to take a break before the loss started again. My scalp and skin are very sensative. I saw a dermotologist and she said the only way to avoid hair loss was to stop this drug. Maybe the company will find a solution for the side effects and improve this drug. Take care.
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	mishkyn	Aug-30-05, 12:56 PM (CMT)
	2. "RE: topamax and hair loss"
	Dear Laura, I had such slow and insidious hair loss with topamax that it took me quite a while to realize it was happening. My dr had told me it did NOT cause hair loss, because I had a horrid experience with depacote, after about 3 weeks, I ran my fingers through my hair and a huge clump came out. I went to a pharmacist and asked about the T, and he said it did cause hair loss, and when I phoned my dr, she admitted it did, but did not tell me because I might actually "cause" hair loss by believing it could happen. (The ultimate in maternalistic behavior by a dr). She also told me that the hair loss would continue for 3 months after I tapered off the T. But she was wrong, it went on for 8 more months, and it took 12 months before my hair began actually growing thicker. I hope you will not take as long as I did, and you probably won't, because I am prone to this particular side effect. Not great news about the hair loss continuing after you stop the med, but at least now you KNOW. Good luck, Mishkyn
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LTAYLOR1	Aug-30-05, 02:40 PM (CMT)
3. "RE: topamax and hair loss"
LAST EDITED ON Aug-30-05 AT 02:42 PM (CMT) I had no hair loss while taking topomax - but upon ceasing the drug due to the fact I had turned into a stupid, forgetful zombie - my hair started falling out. I see a long hair specialist and he stated it was not falling out but breaking - a lot! He suggested mega conditioning, no brushing or even combing when wet. only gentle finger styling & giving my hair a break from styling as often as possible. I use a product by Redken called "No Snap" (I think that is the name) it is a leave in conditioner. You might also try Garnier Fructis Long & Strong - it is a fortifier - seems to help. Kerastasse makes some very good products as well. One of the posters here had doctor that suggested the Nioxin products. So I use at least a million different hair products monthly to try and get it back in shape. I also did not color it for a few months - well I did use the Miss Clairol Loving Care - not permanent, washes out in about 6 shampoos a few absolutely neccesary times. Ps - I wanted to add that silicone products like Biosilk, or other shine products do make my hair break and fall out.
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