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deadhead	Apr-22-02, 04:02 PM (CMT)
"chronic daily headache syndrome"
Hi am new here. Was just wondering if anyone else has been diagnosed with cdas? A nuerologist told my that is what I have, but primary doc says chronic migraines. Just got switched to inderall and fiorinal. If I don't take meds then I have a migraine 24/7 with no relief without demerol. Anyone out live with pain constantly?
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RE: chronic daily headache syndrome, mb20robfan, Apr-22-02, (1) RE: chronic daily headache syndrome, cherieo, Apr-22-02, (2) RE: chronic daily headache syndrome, deadhead, Apr-24-02, (7) RE: chronic daily headache syndrome, petey, Apr-22-02, (3) RE: chronic daily headache syndrome, Richard, Apr-22-02, (4) RE: chronic daily headache syndrome, Bedoroses, Apr-23-02, (5) RE: chronic daily headache syndrome, Norma, Apr-24-02, (6) RE: chronic daily headache syndrome, deadhead, Apr-24-02, (8)

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mb20robfan	Apr-22-02, 06:45 PM (CMT)
1. "RE: chronic daily headache syndrome"
How long have you had migraines like that? I've had a migraine everyday for 6 weeks with 2 ER trips and I feel like I'm dying. I'd like to know how other people live with daily pain like this.
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	cherieo	Apr-22-02, 06:47 PM (CMT)
	2. "RE: chronic daily headache syndrome"
	My husband Jerry will have them 2 years in June. Cherie
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	deadhead	Apr-24-02, 01:25 PM (CMT)
	7. "RE: chronic daily headache syndrome"
	I have had this type of headache for about 3 years now. Just came on like a freight train. My first and only nuerologist said that it chronic daily headache syndrome and told my I had to learn to live with it. Sucks!!
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petey	Apr-22-02, 09:05 PM (CMT)
3. "RE: chronic daily headache syndrome"
Hi Deadhead. I sure feel for you. Do be careful with the fiorinal. That can actually cause daily migraine. It really helps for a while but then you need more and more of it. This drug is notorious for rebound. There is much information on this board about the "rebounding" from our meds. Believe me, I'm not saying that your headaches don't need medication. It's just some of them can actually make things worse. Even using over the counter meds on a daily basis can have the same results. Inderal may make a difference for you. It worked for me but then I had to stop it because it is contraindicated for asthmatics. I have had good results taking a supplement called "Migra-lieve" which is made of B2, magnesium, and feverfew. I made great strides in improving my diet (eating lots of small snacks of whole foods, cutting out the junk, weaning off of caffiene, and drinking lots of water). I don't have the daily migraine anymore. I know how hopeless it feels when the pain gets chronic. Good luck with your battle. Petey
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	Richard	Apr-22-02, 09:16 PM (CMT)
	4. "RE: chronic daily headache syndrome"
	Howdy, My two neurologists go back and forth between either migraines, complicated migraines or status migraine as the primary with chronic daily headache as secondary .... or vice versa. Both migraine and chronic daily headache hurt like the Dickens. But migraine has to meet certain diagnostic criteria to be called migraine. Chronic daily headache has to hurt in the head all the time, real bad ... an easier and "safer" diagnosis for physicians to make. Many doctors still maintain that one can NOT have daily migraines for weeks, months, years. All evidence to the contrary ... so they sometimes (I think) give a non-migraine diagnosis for chronic headache. That's just he way it seems to me. I don't care what they call "it" if they will only fix it! (LOL at the sadness of it all) Hang In There! Richard
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	Bedoroses	Apr-23-02, 05:01 AM (CMT)
	5. "RE: chronic daily headache syndrome"
	The sadness of it all indeed!! Chronic..the definition is "marked by long duration or frequent recurrence". So chronic says it all. They do like to add other words to it like status, intractable, complicated, etc. The answer to your question is yes. You can have a headache all the time. I'm not sure if it is what they define as "migraine". That would mean you are fully migraine symptomatic all the time. But the neverending headache is real, alive and kicking in many of us.
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	Norma	Apr-24-02, 08:30 AM (CMT)
	6. "RE: chronic daily headache syndrome"
	Hi dead, nice to meet you, but sorry to hear of your pain. My humble opinion is that you may as well forget worrying about what the doctors call your condition. That really only matters if it affects your treatment options or your insurance coverage. The last neurologist I went to, who at that time was affiliated with a headache clinic, called mine " chronic daily headache with superimposed migraine." That is an accurate description of the way I experience it, so that is what I have stuck with. I quit thinking in terms of migraine episodes, and instead tracked my progress in terms of the level of pain each day. As I began having more days when the level did not exceed 5 (on a 10 point scale), I counted that as progress. I have improved enough over the last 2 years, that I actually have headache free days, sometimes several together, and the headaches severe enough that I call them "migraine" are farther apart, and more distinct. I still have lots of headaches--mild, moderate, and a good number of severe ones--but having some time off in between has made a world of difference in my attitude. Anyway, you won't find 2 doctors who call your condition by the same name. Many are adhering to written definitions that say migraines are always distinct episodes, or are always one-sided, or some other "always" that excludes your situation. I think you just have to quit caring about having an accurate name for it, and sort out the best you can what makes you better. For anyone with a daily problem I strongly recommend a daily headache diary that records information about the level of pain and what meds you are taking. That is what helped me get a "big picture" and learn over time what helped and what hurt. Norma
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	deadhead	Apr-24-02, 01:30 PM (CMT)
	8. "RE: chronic daily headache syndrome"
	Totally understand the basing progress by the amount of pain thru the day or the lack thereof. I am pretty much pain free for most days but when I do get a migraine it is for 2 to 4 days long. I am getting used to the pain in my head after 3 years of it but the upset stomach and the vision problems leading up to dizziness is a real pain in the butt. I am really happy to have found all of you. It is nice to know its not all in head!. Thanks.
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