Journal of Migraine Sufferers
SUE IN YORBA LINDA- You emailed me, and I wrote you back, but I've been having trouble with email. I would really like to talk to you and ask you some questions.Could you email me, and if no responce from me within a couple of days, let me know in this forum? Thanks. Suzy

---Suzy <dparsons@fullerton.edu>
USA -

I have a family history of migraine. Mine are much better now, but my daughter(age 12) has really bad migraines. She has tried almost every medication there is. Her migraines started at age 7. Would like to talk to other people w/family history of migraine, and also pediatric sufferers who are absent from school frequently due to migraine. My daughter is having trouble w/that in jr.high/middle school. Would appreciate any info. marty satterfield

---marty satterfield <swimcat40@hotmail.com>
fairfax, va USA -

I have a family history of migraine. Mine are much better now, but my daughter(age 12) has really bad migraines. She has tried almost every medication there is. Her migraines started at age 7. Would like to talk to other people w/family history of migraine, and also pediatric sufferers who are absent from school frequently due to migraine. My daughter is having trouble w/that in jr.high/middle school. Would appreciate any info. marty satterfield

---marty satterfield <swimcat40@hotmail.com>
fairfax, va USA -

i HAVE WRITTEN IN THIS AND WAS DISAPPOINTED THAT WE DON'T E-MAIL EACH OTHER AWS OFETEN AS WE SHOULD. i LIVE IN CAROLINA AND HAVE SUFFERRED FOR THE LAT 20 OUT 0F 22 DAYS. OFTEN MAKING MULTIPLE TRIPS TO ER OR DOCTOR'S OFFICE.I HAVE BEEN REFRRED TO THE DIAMOND HEAAADACHED CLINIC IN CHICAGO NEXT FRIDAY. IT IS MY LAST RESORT, OR ALMOST MY LAST RESORT. THEY WILL WITHER FIND A PREVENTIVE TYPE TREATMENT OR i WILL LOSE EVERYTHING I OWN. MY MARRIAGE IS SUFFERING. I CAN'T DO MY JOB. I CAN'T TAKE CARE OF TEH YARD WORK OR PLAY WITH MY PETS. I CAN'T TAKE MY DAD FISHING. IT SEEMS EVERYTHING ABOUT MY LIFE IS COMING APART AT THE SEAMS. DOES ANYONE OUT THERE KNOW ANYTHING ABOUT THIS CHICAGO CLINIC? PLEASE E-MAIL IF YOU HAVE ANY INFORMATION. csraine@usinet
Chuck Raines <csraine>
Reidsville, NS USA -

i HAVE WRITTEN IN THIS AND WAS DISAPPOINTED THAT WE DON'T E-MAIL EACH OTHER AWS OFETEN AS WE SHOULD. i LIVE IN CAROLINA AND HAVE SUFFERRED FOR THE LAT 20 OUT 0F 22 DAYS. OFTEN MAKING MULTIPLE TRIPS TO ER OR DOCTOR'S OFFICE.I HAVE BEEN REFRRED TO THE DIAMOND HEAAADACHED CLINIC IN CHICAGO NEXT FRIDAY. IT IS MY LAST RESORT, OR ALMOST MY LAST RESORT. THEY WILL WITHER FIND A PREVENTIVE TYPE TREATMENT OR i WILL LOSE EVERYTHING I OWN. MY MARRIAGE IS SUFFERING. I CAN'T DO MY JOB. I CAN'T TAKE CARE OF TEH YARD WORK OR PLAY WITH MY PETS. I CAN'T TAKE MY DAD FISHING. IT SEEMS EVERYTHING ABOUT MY LIFE IS COMING APART AT THE SEAMS. DOES ANYONE OUT THERE KNOW ANYTHING ABOUT THIS CHICAGO CLINIC? PLEASE E-MAIL IF YOU HAVE ANY INFORMATION. csraine@usinet
Chuck Raines <csraine>
Reidsville, NS USA -

I wrote several months ago about my headaches. They started in 1984 after I had a hysterectomy. My overies were left so I nor the doctors really believe that they are due to a homone imbalance, though I do now take estrogen since I am now 51. I also take a new anti-depresent, Serzone in the AM and PM (100mg each), Stadol nasal spray at the onset of the headache...does not work everytime though...Synthorid for a tyroid problem, Flonase nasal spray for allergies, and Calcium. In the past 9 months I have had two back surgeries, one at the Lumbar and Sacral spine regions and one at the Cervical spine level. I took pain pills, valium, muscles relaxers, (2 of them), several other meds daily for 6 or more months. I was a basket case. I answered the phone when no one was there, I reached out to things that were not in my reach, I spoke with people that were not there and apparently made phone calls at strange hours of the night. My MD at the time, finally labeled me a drug addict and essintally abandoned me. But he has his other problems and has abandoned his other chronic pain patients. I looked for another doc in the town I live in, and found one that is working trying to find the reasons for my headaches. In the meantime, he does provide the Stadol spray, but I am under pressure not to have another headache for two more weeks,(when I can have my medication refilled). I did have one last night and ended up in the ER where I of course was relegated to sitting in the waiting room until all the patients were gone. Nearly 2 hours of waiting. I was finally called in and the nurses looked at me with the obvious ridicule of "Oh my god, you're here again?" My doc was supposed to call in a med for me (Nubain 20mg and Phenergan 50mg), but apparently he forgot...not sure of that...I went home a nd the headache did subside and I do not have it today, just the hangover of the headache. I don't take Demerol, it gives me a rebound headache. Verapamil gives me heart palpitations and shortness of breath, I can't take Imitrex because of a strong history in my family of heart disease, though my heart is, so far, fine. Sansert worked for the headaches...making them stay away, but the med gave me the same symptoms as Verapamil and I was taken off it. So, I can relate to all of you in your search for a cure or at least the DEA and MD's to understand that there are people out there that have REAL pain and need pain medication, we are not drug addicts, we are just people that have pain and need understanding and medication. Thanks for listening, and I hope to hear from some of you all. Linda llong@terraworld.net

---Linda <llong@terraworld.net>
Coffeyville, KS USA -

I am looking for an international parmacy for my expensive RX's. When I went to Mexico on a vacation, I was able to buy imitrex tablets at half the cost. I have tried to surf the net looking for a pharmacy, but can't find one to supply me with all of the different med's I take. Especially the xanax and the stadol. If any one can help, please E-mail me. :)

---Rosanne <Cruise201@aol.com>
Powder Springs, GA USA -


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