Journal of Migraine Sufferers

Rhonda, did you have a clue what this journal was going to open up??? Hey CRAZY, you're everything but. Your Doctor gave you enough pills to commit suiside! That tells me the man (or woman) doesn't know anything about our affliction. Thank God you realized what you did because in the future you will be careful of what and how much medication you take. In my opinion, every single one of us was born with a disease that we inherited. I've never heard a professional refer to it as such, but what else can you call this inner hell that strikes at any time?? I've had three in six days and I'm exhausted. They come, and they leave when they are ready. I don't want any more meds. to make me dizzy, sick, confused, and helusinate. To poison ourselves to get some relief just shows the amount of pain we are enduring and we all know it's a toss up of recieving help or possibly making matters worse by adding a few side affects. All of you girls with the hormonal headaches; try eliminating salt from your diet for 7 to 10 days before your due and pop a FEW ADVIL for one week before and most of you should get alot of improvement. It has helped alot of people I know. NOT A CURE Just a bit of help with the amount or severity of the headaches. Glad to hear from all you guys because Drs. for YEARS claimed it was a histerical girlie thing that must have meant we were all nuts. Holidays are coming, stay calm, stay away from salt, sugar highs, and any overindulgences because we never know when that "grinch" that steals so much of our precious lives will attack. We go throuh so much pain and know there's more to come, but we keep going, and that makes us all very special. If there are any Doctors out there reading this journal, please realize there is an entire society out here that needs research and caring, not just the pills we swallow out of desperation.
USA - Date: 11/19/98 (Thu) Time: 09:37:52 PM
Awful day today. The pain was so intense at times. I could'nt take a nap and try to rest, the pain was that bad. Light just made it worse. I took probably the highest dosage of midrin that I am allowed in an 8 hour period-5, and it still did'nt cut the pain much. It's lurking back there now, waiting to pounce on me. I lost a day of sick leave to this headache and a cold. Have things to do tomorrow for the upcoming holiday season. I dread the thought of dealing with the holidays. There is so much to do in such a short time frame. I try to rest as much as possible, but already, I've had two bad migraines in the space of a week. Any more rest and I might as well give it up. Thanks, Rhonda, for this journal. It is good to have a place to go to and vent, and to not feel quite so alone. At least you guys understand how bad a migraine can be.
Barbara B
USA - Date: 11/19/98 (Thu) Time: 08:34:31 PM
After reading some of the experiences in here, I feel guilty saying I get migraines (I rarely get nausea, dizzy, etc. - just hurt bad). I keep reading about feverfew. Does anyone know if it reacts with any presrip. meds? I take Inderal(am) and Amitriptylene(pm) daily and Midrin/Vicodin as needed (which is way too often!). Thanks!!
Tim Bendokas <>
Bothell, WA USA - Date: 11/19/98 (Thu) Time: 08:03:18 PM
Question: I have been keeping up with new entries daily since I found this site. I was given Imitrex soon after it was approved in the U.S. and stayed on the injections until the tablets became available. The episodes described here of tightness in the chest, severe and almost immediate pain (from the injections), pressure and tingling and numbness in the extremities, all of these happened to me, but I continued to take them until the Zomig came out. My doctor is always willing to try new things with me and offered me the Zomig. I was given the 5 mg tablets to begin with. They worked wonderfully. Does anyone have any history of using the Imitrex and switching to Zomig and finding that the side effects are not as bad with Zomig. It also has worked very well for me, much better than the Imitrex. I keep waiting for the heart attack or stroke, though. Sometimes, as I noted in a previous post, I will attempt to go without any medication as long as possible before giving in and taking something. By then, I am well on my way to a full-blown attack. What is the answer to such a dilemma? We all know that the drugs, no matter what their mode of action, can't be good for our systems. I , too, worry about liver and kidney damage. Now, there's also the possibility of serious side effects with the Zomig and other drugs of this same class. I have 4 of the contraindications for NOT taking the Zomig, but when the pain hits 7 or over, I don't care anymore what happens. Is that what everyone else does, too? I love having this page to submit my thoughts about the headaches, but also I think maybe I am a "crybaby" and should "suck it up and go"....ok....yes, Good Samaritan, I know I will get a response from you, but I was using verbal irony when I made the comments about significant others no long empathizing with my plight. I don't think non-migraineurs every really understand the agony we go through. Then, I also feel guilty sometimes when I know there are so many other people with more serious, sometimes permanent problems, i.e. MS, Parkinson's, fibromyalgia, arthritis, etc. I wonder if we have the right to complain. You see, I come from a family where migraines are a way of life. We all have them. My poor nephew started having them at 15 months. He would tear at the left side of his head and cry and vomit. My sister married into a family with cluster and migraine. The poor child had no chance. Right now, I am thinking that by morning another one will hit. If it does, I'll do what I always do, take the Zomig, Phenergan, pop two freezer pops into my husband's tube socks, put one on my head and one around my neck and sit in my "specially-designed" throw-up chair and wait patiently for the nausea to come in waves. I'm probably the only person in the U.S. with a chair architecturally designed to allow optimum access to the commode with the least amount of splash. Terrible visual image, huh? Rhonda, when you read this, if my entries are too long, yell at me and I'll cut the spontaneous generation to a minimum. I don't want to give up my rights to share my feelings. This is the first time in my life I have felt comfortable being myself without worrying about what anyone else thinks. To me, that's the whole point of a site of this type. Thinking out loud, divergent thinking, if you will, is good for the soul.
GA USA - Date: 11/19/98 (Thu) Time: 07:57:45 PM
Melissa, I was on Imitrex for a while and believe I was one of the few people who had no side effects from it. I started on the tablet, which worked for a while, then I switched to the nasal spray. I tried the injection once, but since it didn't work at all and I have a serious needle phobia, I never used it again. The only thing with the nasal spray is the burning sensation that you feel as it runs down your throat. Horrible taste, but bearable if it would get rid of the migraine. It just doesn't work for me anymore. The more I hear about the long-term effects (ie. heart issues), I'm kinda glad I don't take it anymore. I think it's all about how well your body tolerates meds. I seem to have a high tolerance. I once took 6 Fioricet in a 12 hour period to get rid of one and I wasn't even sleepy. I know of someone who gets knocked out of of 1/2 a pill. Good luck keeping the headache diary, I tried and couldn't do it. Once I go to sleep and wake up the next day, I can't remember everything that could have triggered it. Good luck and be careful. - That's the website from Glaxo Wellcome, the makers of Imitrex. You can read on some stuff there. Jeannette
Jeannette <>
New York, NY USA - Date: 11/19/98 (Thu) Time: 02:34:22 PM
I just want everyone to know that I almost killed my self last week. My Dr. gave me 120 Vicodins to last me about 2 - 3 months, but what I did was taking about 4 at atime every 4 hours. That's how much pain I was in. It would help some, but never took the headache away totaly. It just made me comfortable. I took them all in 2 weeks. I couldn't believe that I did that. But I did! I spent the last day of the 2 weeks in the bathroom vomiting because I almost over doesed and I through the perscription away. I sware I will never, ever take another narcotic in my life after this experience. I think I just liked the high that it gave me. That's how easy it is to get addicted to this stuff. I am just warning you guys out there who take this stuff.
Riverside, Ca USA - Date: 11/19/98 (Thu) Time: 02:31:16 PM
Hi everyone. Well, hope most of you are having a pain free day. I just got back from my neurologist appt. He was very nice and is wants to start me on Imitrex. Whatever works. Hopefully this will. He did confirm my worst fear. It is migraines that I've been having and I'm now to start keeping a headache diary. I have to thank my wonderful boyfriend who has been so supportive of me. Last night he sat and rubbed my temples for me for hours. Unfortunately, he's at work now, because my head is still splitting and I could use his magic hands. I hope this medicine works, but from reading these posts, it seems like I might have to go through a series of experiments. But, maybe not. It is a very, very frustrating feeling to have to cancel plans and in my case, miss classes. I'm a college student. I can't stand throwing up and unfortunately, too, that's a lovely side effect. Ugh. Again, going to go lay down with yet another ice pack to try and calm down this pounding in my head. Hope everyone has a good day. Melissa.
USA - Date: 11/19/98 (Thu) Time: 09:57:31 AM