I worked as long as I could (12 years) but they got so bad I had to quit. My biggest trigger is bright sunlight and I live in Austin in which bright sunlight is endemic. I would like to move to Seattle, but my husband won't go. I don't want to force hime to go because if I didn't improve or he hated his new job, etc it would be my fault.
I want to get a masters in Epidemiology, but the closest classes are one and a half hours from here. They finally admitted me to The School of Public Health but with these headaches, I can't even keep up with my mail let alone a class.
I've tried all the heart drugs, accupuncture, biofeedback, feverfew, chiropractors, physical therapy, hypnosis, TMJ treatment, different pillows, different beds etc. I take vitamins and exercise almost every day. I even bought prescription glasses that were supposed to block blue light.
I give up, but I am interested in what has helped anybody else. I'm probably willing to try it.
---Susan Kollath email@example.com
I was very happy to find your page dealing with migraines. I have suffered from the pain of migraines from my very first remembrance as a child. It is very comforting to find so many testimonials from others who have had much the same experience.
Today, I am 45 years old, married, and have three grown children. I thank God that neither my wife or my children have had to suffer the pain that I have endured over the years.
I was always very active in sports while growing up, and even into my late twenties, being a member of an amateur baseball team. Yet, I always just accepted the fact that there would be times both at work and play that I would be incapacitated due to my affliction. Thankfully, I've always had understanding people around who could sense that the pain I was going through was different from your "normal" headache.
There were many times as a young boy that I would be out playing with my friends and start to feel a headache coming on. I would fight it as long as I could, but ultimately it would make me nauseous. I would make an excuse that I had to leave and then find a private place to vomit. And like so many others with this problem, I wound up spending too many hours in a dark, quiet room with a pillow over my head until the pain subsided enough so that I was sure I would survive after all.
Fortunately, as I have gotten older, the number of migraines I endure per year has decreased. For some reason, I may go several months without having even one. Then, I will seem to get into a period where they will happen maybe once a week for a short while, and then diminish to perhaps once a month before they disappear again for a length of time.
In every case, I can always feel a tightening at the base of my neck. When I turn my head at a particular degree or direction, I can hear a loud snap inside my head. Oftentimes, even my spine and shoulders will be so tight that I will swing my arms in a circular motion just to try to loosen things up, and, once again, my spine and joints will make a cracking sound.
Some days when I get up in the morning, I awaken with a headache. Other days, I may get an early warning that a headache is coming on because my eyes are very sensitive to light, even before any pain starts.
I have also noticed that many of my headaches coincide with a change in the weather, especially, if we've been experiencing relatively stable, warm weather pattern for a long time, and then a sudden cold front arrives. Or, an extended cool, wet pattern seems to produce a lot of headaches for me. Days of high heat and humidity can also give me problems. Under those conditions I will wake up with a lot of sinus pressure, and feel the need to keep blowing my nose, even though I may not be producing a lot of mucous. Many times I can come out of those situations fairly well, and get some relief from ibuprofen and decongestants, but other times it will develop into a full blown migraine event.
In reading the other case histories, I can say that one thing I don't have in common with others is the fact that I haven't taken a lot of different drugs to try and solve my problem. For one thing, I've really never consulted with a doctor who claimed to understand migraines. Most of the doctors I've dealt with have all attributed my headaches to sinus problems - which I do have - but cannot account for kind of headaches that make you think the end is near!
I finally explained to the sinus specialist that I've been seeing that I didn't think that my sinus problems were the whole answer to my headaches. As I described what happens to me he seemed to agree, and suggested that the next time I come back he will probably direct me to a neurologist. In the meantime, he prescribed midrin to treat my headaches. After using it a few times, I can only say that its given me limited success. On one occasion it worked very well, but in most cases I would say it just makes the pain more tolerable.
I think the thing that would give me the greatest satisfaction, is if I could find a treatment that I could count on day in and day out to work for me. Like anyone else, I often project a few days ahead, trying to plan my important events so that I can accomplish everything in an oderly manner. After doing this, the fearful thought always arises, "What if I get a headache that day?" Such a concern doesn't do a lot for your confidence. That's why I need a reliable treatment method.
I would appreciate any comments or suggestions from anyone who can identify with my particular symptoms. And I do appreciate being able to air my experience in this great forum. Thanks!
Glad I could share my story with you, I'll leave you my Email if anyone wants to email me.... Take Care,
Found your page recently. I am a 38 year old female suffering from Migraine both with aurua and without. I am a patient of the Ford Headache clinic in Birmingham, AL. I found Dr. Ford to be the best of all the doctor's I have seen. He actually listens to you. He also suffers migraine's. I have had them all my life and now my two sons unfornualtley are experiencing them also. I have migraine at least 3 times per week. On my good times I can go maybe 10 days without one. I am presently taking DHE 45 injectables. I've tried everything else you could possibly imagine. I am allergic to imetrex and had many side effects from all the other med's I tried. DHE works if you take it at the very beginning of symtoms. I also have been looked upon as just a drug seeker. Until I found the Ford Clinic, I have been taking Staydol injections at the ER. Needless to say it helps allot with the pain but also causes rebound. I want desparatley to find a support group on-line. I am new to the internet. How do I find Alt.support.headaches.migraines? I've tried several search idea's. I pray you are headache free today. I am not. Please don't let my e-mail address fool you, it's my husbands. I am currently in the process of getting my own. Please email me at firstname.lastname@example.org
I have had 3 KILLER headaches, each 2 weeks apart and nothing has changed. Its possible I'm beginning to go through a hormonal shift (menses returning) or postural problems associated with lugging around my 21 lb son or ???? any ideas? I checked out the Migraine zine and I can tell you its definately not caffeine withdrawal!!! Also, does anyone know about the safety of Imitrex while nursing a baby? I've had a really hard time getting any info on it. Any help will be appreciated. I'd also like to correspond with any women who have migraine related to hormonal cycles. Many thanks to all on this forum - its great!
I was taken by ambulance to ER .CT scan showed nothing amiss.I have some more tests coming up.But this new episode changes everything.I am not sure who I am now. I don't know what my limitations are anymore.I can identify with a lot of your corresponders about being seen as "drug-heads" because of our search for relief. I stopped looking for help and just suffered though the best I could. Fortunatley I think that the neurologist I am seeing is one of the best choices I have made in years.
And as for the jerk who wrote that nonsensical baloney in MigraineZine- May the Good Lord see fit to show you what a migraine really is...
---Suffered in Silence A.Upchurch@nando.net
I actually put up with this for the last three yrs. Lately, my migraines were VERY frequent. One to three shots of imitrex per day for about 7 weeks (please, no comments on the third shot of imitrex within a 24 hour period...we do what we gotta do!). I decided to see yet another neurologist, so I called UCLA. I was given a wonderful neurologist...she is the head of the migraine/headache program there. The best part is, she is a migraineur!!! What a difference. A doctor who actually believes my crazy headache stories. And, she actually wants to keep trying different things in order to stop them!!!
She LISTENS. I have found that to be the key word in my search for the migraine answer. The doctors have to LISTEN to you.
She sent me to another UCLA doctor who is an ENT. He also LISTENED to me. He soon agreed with me that my migraines were sinus related. The cat scan showed my left sinus was blocked. He suggested surgery, which i had 5 days ago. Ive had a lot of pain from the surgery, but time will tell if it works. He tried to "block" a nerve in the right sinus which he thought was a contributor to my migraines.
Well, if this doesnt work, I will continue the search. I know my doctors will continue...and that is important.
The message I would like to send here is......Dont settle for the status quo. If you have a doctor who is not helping, or LISTENING to you.......GET ANOTHER DOCTOR!!!!! They are out there...you just need the right one...
---Scott S. email@example.com