i hope you guys have some help for me out there!!!! i don't use any aspirin or anything 'cause they don't work so i usually take the !@#$%^&*()_+ pain!!! FOR THREE DAYS!!!
hope to hear from you soon,
However, I know I am taking too may fiorinol and I am trying to cut down. Believe it or not, other than the above, I am in good physical condition. Very active when I fell good, and have kept myself in good shape. Just want to be happy. HELP????
I have tried most medications. The ones that have worked the best for me are Fiorinal #3 (pretty strong stuff), Ultram (new stuff) and a demerol shot as last resort. The imitrex makes me feel like I am going to explode and sometimes works, sometimes doesn't. It is very difficult for me to have a doctor or nurse, who do not personnaly themselves suffer from migraines, talk to me in a demeaning tone about, "now what you need to do is quit depending on those pills...what you need to do is find a hobby...what you need to do is try over the counter tylenol...get the extra strength!" Oh please I think as they ramble on. I try not to go to the doctor or emergency room because the whole fiasco of telling the doctor what is wrong, listening to the lecture and then waiting for them to decide what they are and are not going to do is almost worse than the headache! I understand the professions concern about addiction, but when you are suffering you just can't worry about that, you just want it to stop! I have a great family who understands and a husband who sticks up for me. Recently I was given the drug ULTRAM then abruptly the doctor decided I shouldn't take it because it may cause weightloss (I am little). I couldn't believe it! Here was something that was finally helping me and instead of taking it away because it was bad for me, he thought maybe it would cause me to lose weight, etc. Well, I set up a conference call with him, my main doctor. I did this when I wasn't suffering from a headache so I could speak with them without being sick.
We discussed everything and I told them how I felt. It really helped us all understand my migraine illness and hopefully has made them more sensitive to those who truly DO suffer. Who knows....but hang in there everyone.....
I have heard that increased physical activity can aggrivate the condition. However, I believe that consistent regular physical activity can help avoid migraines. About six years ago I started an exercise program - nothing too intense, just aerobics and light weight training three or four times a week, no more than a half hour to an hour each time - and I noticed that the migraines stopped coming. Completely. I thought maybe I was through with them. Then about sixteen months ago I had a baby. I kept up my exercise program through my pregnancy, but after my daughter was born I suddenly had a lot less time on my hands and I stopped exercising. Suddenly the migraines are back. Two in the last six weeks in fact. I'm working now to get back into an exercise routine and I'm hopeful that I will again be migraine free. I hope that someone else will find this helpful.
The headaches had worsened (24 hours of dull aches and several times a day of severe sharp pains) and the vomiting continued 2-4 times a day. Jimmy's pediatrician spoke with another neurologist at Walter Reed Hospital (the best military hospital in the world) and he wanted to see Jimmy. So off my husband and son went. Now they are leading more towards Migraines. They are going to do another EEG and compare it with the original EEG done in April.
My son has been seeing a bio-feedback doctor on a weekly basis and this does help him. He thinks the world of this Doctor. I suffer from Migraines as well and thought that it was not a continuous problem. That it came and went. My son has no refief from the headaches and vomiting is a daily thing.
They have started him on a beta-blocker for the headaches and have now started him on Zofran for the vomiting.
I would love to hear from anyone who's child or themselves have similar symptons. Having this happen to your child makes you feel so defenseless. He is a brilliant child who has exceeded in school and sports. He is a well rounded child.
At this time in my life, I have at least one severe migraine per day. Some last only a few hours, others last all day (and then some). The pain at times is so overwhelming, I don't know what to do with myself. I have tried self hypnosis and biofeedback without success. Exercise only makes the pounding worse. My senses are all out of whack during an attack; I'm bothered by lights, sounds, and smells. Flashing lights (strobe type effect) can set off an attack any time. Even the beautiful sunlight filtering through the leaves of the trees as you ride along in the car can trigger an attack. I have identified certain foods which may act as a trigger, such as too much orange juice, raw onions, or excessive chocolate. Strong perfumes or other odors also have triggered episodes. The local hospital treats migraine sufferers as nuisancesand use demerol for the pain. Demoral does nothing to stop the pain - it only numbs the rest of you for awhile. Personally, I am hyper for days after such injections. A hospital about an hour from here will use toradol and decadron, usually more effective, but spending hours in an emergency room on a regular basis is no way to live.
I have been hospitalized four different times to brak particulary severe cycles of migraines. I used to go to the New England Center for Headache Treatment in Connecticut and had some success there. However, the distance is now too great, my insurance will not pay even a portion of their charges, and the doctor I saw egularly is no longer there. I have been considering contacting Montefiore Hospital in NYC or a headace center in the Philadelphia area for help. Is anyone familiar with either place? I am desparate for help.
In addition to the migraines, I suffer from a connective tissue disease and chronic fatigue syndrom. With all the physical problems, I have a problem with depression as well. Some days are very difficult to face, knowing that for most of the day, I will probably be in pain. My family has been wonderful and very supportive, but I'm tired of my physical state controlling our lives (no pun intended!). Please write if you are familiar with either of the two headache centers I mentioned or if you have some suggestions for something I haven't tried. I look forward to connecting with others who understand the pain that defies description. My e-mail address is GGIB2757@WARWICK.NET.
PS My name is Bev Giblin and I teach first grade.