On-Line Migraine Journal

The on-line migraine journal is intended to be an area for migraine sufferers to post their migraine histories and experiences.

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Please note: Posts are not automatically added to this journal. If you desire a prompt posting/response time, please use this site's discussion forum. Also, please try to use the discussion forum for question/response types of entries. The journal is intended to be a place to accumulate experiences and information, which can be used as a reference to those who wish to learn more about what it is like to be a migraine sufferer. Thanks!





As many of you have mentioned, I am surprised to see so many people who have the same symptoms as me! It makes me feel comforted, yet sad. I have been having migraines since I was 16 (I'm 27 now). However, mine also include numbness on one side of my body, slurred speech, and general confusion. I get so embarrassed - I can't explain what's going on to people who don't already know because I can't find the words during an attack - even simple sentences. Does this happen to anyone else? I have to call my husband to come get me when a migraine comes on, wherever I am. He knows what's going on as soon as I call, because my sentences are slow and sometimes don't make sense. My worst fear is that someday I will have a real stroke, but not know it because I'll think it's just another migraine. It scares me because I have a two year old daughter who needs me to be well (functional) everyday. Thanks for letting me vent...

Tiffany <avande@bytehead.com>
Thursday, November 1, 2001 at 21:49:23



Hello everyone. My name is tony an i am 18 years old. I have been getting migraines since i was about four years old. Just recently i say about two years ago i got my first aura. The C in your eyes that looks like a prizm of light. My migraines dont come to often every few months but when they come they come hard, today i am writing i left work about 7 hours ago . I had an aura so i popped an motrin and the migraine kicked in. I work with my family (mom, aunt, uncle) and mondays are our bussiest day. She got rather mad when i told her i HAD to leave because just half an hour before i was so chippery making jokes and laughing. She looks at me like (ya right) but ok. I had to have my mom come get me from work because i couldnt drive home. I had to shower which only helps while your in the shower. Then i had to vomit continuously until i gagged, it is terrible. I wish i could give them just one day of the pain we go through so that they would understand. They look at us like we just want a say off and that isnt so. MY migraine today has been the worst ever while riding in the car i felt as if either the migraine was going to dissipate or i was going to pass out. It was horrible and hopefully on day there will be a cure. For everyone on this site i know what your going through and i share your pain. God bless.

Tony Scham <mokelizer@yahoo.com>
Monday, October 29, 2001 at 17:26:52



Hi, my name is Lyn Soon (28) and I have suffered from migraines for 3 years. I recently went to the doctor's and he perscribed Imitrex. I had done research on the internet, keep a diary, talked with a nieghbor prior to asking the doc for drugs. He gave it to me no questions asked. My migraines are linked to hormones and even so are very sporadic. One time I went three months without having one and then i was talking with someone and I said to her " i have not had a migraine in months and the next day i had one. I jinxed myself. I feel kind of lucky becasue I don't have them every day but once a month is enough. Anyway, I would love to hear from people who have suffered from hormonal migraines. I don't think my mom is convinced that migraines are real but i do not care because I am an adult and I know my body and what it is trying to tell me. So all those girls and guys out there whose parents don't believe them are full of it themselves. No offense, parents. Keep a diary so you can show the doctor. If your current doctor, cannot help, go to another one and keep going because this is serious. Just because you are under the age of 21 does not mean that you should not be taken seriously. Pain is a way that your body tells you that there is something wrongg and do not ignore it....

Lyn Soon Hull
nethull@aol.com

or PO Box 541
Montpelier, VT 05601

Lyn Soon Hull <nethull@aol.com>
Sunday, October 28, 2001 at 17:01:29



Hi I am new to this site. I just recently found it. Thank goodness. I am 31 yrs old and I am a Paramedic and I get migraines about once a month. Usually when i get them I have to go to the ER to get a shot of Tordol and Phenegran. Sometimes I can just take my Imitrex and lay down and it will go away but lately they are the same......
I am the mother of two and my youngest gets migraines. But we know what triggers his. His sinuses. If he gets a cold we trewat it immediately. He carried a special medicine box that had meds in it for him. I am happy to say he has not had one since July of last year when we went on vacation. I however am still trudging along with them.
I think my biggest gripe is I work for an ambulance service and I see people who try to imitate a migraine. Just to get pain meds. But I can tell the real thing. But some of the guys I work with question whether or not I get migraines. And that infuriates me. I have never wished a migraine on anyone not even my worst enemy but for those who don't believe a headache can be so bad may they suffer a horribly bad one....I even told my director who also questioned my migraines. Like I schedule them or something......He thinks I can work after I have had a shot even went so far as to ask the doctor how long the meds stay in your system. That really upset me I told him after I have a migraine its all I can do to get off the couch because I feel so wore out and blahhhhhhhh.......If anyone is interested in emailing me and talking about migraines please feel free to do so. I am just glad to see the website.....thanks for your time....susan

Susan Stanley <earlsgirl@gccinternet.net>
Saturday, October 27, 2001 at 12:10:49



Hello Migraine Suffers,
I am a 15 year old and I suffer from severe migraines. I started getting migraines when I was in 3rd grade. i would only get them about once or twice a year, but then in 6th grade they started to get more frequent, 7th even worse, and by 8th grade they were every day.
I am now a Freshman and I can't live the normal high school life. I am doing homebound school so I can stay caught up. I try to go to activities when I feel well. friends just don't get what I'm going through though. Because I don't have an illness you can see.
We have tried a billion different remedies, and nothing seems to work! If any of you have any suggestions please e-mail me and let me know.
Or if you suffer from these to and need some support!
God Bless you all! NO MORE MIGRAINES!

Lauren

Lauren <Hotlilchicka05@aol.com>
Saturday, October 27, 2001 at 00:23:56



Ok I am having this problem with my headaches. They were more like twice to three times a month and lately they have been EVERY day. My neuro gave me meds that I have taken before. They used to work then quit and It has been a few years since I have taken them. Anyway I told her that I was popping tylenil and asprin like candy. She said to not take them every day. She also told me not to take my meds every day. This is so frusterating cause I get no relief from anything that I do lately. I tried not taking the for two weeks like she said and every day I was in the bed with a migraine. So mission NOT accomplished. What can I do next. I know that taking the meds every day isn't good for me and the ones that I do take every day are non narcotic. I do have some of those but don't use them because of the addiction factor. What can I do???????? I am so tired of having them every day and nothing helping me deal with the pain. I guess it wouldn't be so bad but I have three boys and can't do the things that I should do because of these darn thigs. Yes my children are taken care of but then I am right back in the bed blinds drawn and washcloth on the head and neck. Migraines are nothing new to me since I have had them since I was 13. So I have had them for 14 years now. But any suggestions as to helpong me with tese every day things would be greatly appreciated. That is a new one to me or at least semi new. This has been going on for a few months now. I even quit my job so I would be under less stress. That hasn't even helped. Thanks, Nikki

nikki <sonflr@aol.com>
Friday, October 26, 2001 at 23:38:14



Hello again to all who come here,
I posted a few weeks ago, and decided to come back on here and see if there were any new stories to read. Most sound like my life story, and I thought I would type a little to get my frustrations out. I am getting tired of this constant daily migraine/tension, and although I am constantly trying out new things, and have had just about every drug for pain known to man, nothing works, and my whole head has been ON FIRE for 3 months now, has been almost daily for 3 years. It is getting really old now, and all this squeezing and stabbing is driving me batty!!! I can't type any more than this, because the computer screen is making my eyes go blurry and hurt, and I will need to go pill up soon, and get in the dark in bed.
Anyway, I do feel a little better having vented some on here, and anybody who is reading this and has a similar story, and needs a friendly "ear" to type to, go right ahead, and I will try my best to reply.

Sincerely,
Caroline.

Caroline <eniloracdnalloh@hotmail.com>
Thursday, October 25, 2001 at 22:28:50



wow. i can't believe how much better i feel after seeing your site. it's amazing to know that so many people are suffering through what i have to go through.

i haven't had migraines for very long. i'm 16, female, almost 17. they started around school started, which was the beginning of august. the only difference i can see between my migraines and all the rest described on your site is that i have had ONE CONSTANT HEADACHE ever since it started. it varies; some days it will be horribly bad, other days it will calm down and i can actually move my head. but it never leaves. i can always sense that it's here, no matter what. i now have a neurologist and i have been on topamax, am currently taking inderol and imitrex. i was also on zomig, but that did nothing. i have recently started getting pain in my back, and i was wondering if anyone knew if it could possibly be a side effect of the inderol? i would appreciate responses. :) the weird thing with it is, i haven't experienced any of the other migraine symptoms (auras, etc.) and it just popped up recently. i haven't had previous migraine problems or family history of migraines.

the migraine can get so dabilitating that it keeps me out of daily activities and makes me not able to concentrate in school. it also affects my playing sports. i'm about sick of it.

well i just wanted to thank you, this is so great. i know a lot of times it can seem like no one understands what kind of pain you're going through, and it's really helpful to see a site like this.

ali

ali <ladyram1@bellsouth.net>
Thursday, October 25, 2001 at 22:10:08



Hi Brittany!! I'm so sorry that you have migraines. Mine started at around age 14 (I'm 26 now) and like yours they are horrid. Anyway, (to add to Joyce's post) you might want to add MSG (a flavor enhancer) to your list of "be-careful-of" foods: especially for your age group, since several fast food outlets (KFC & some Chinese food) use tons of it. It's a pain to watch ingredients so closely, but I have found that taking a little time to look at labels can help a lot in preventing blindness and pain (a pretty good alternative!) Also, foods like Top Ramen (seasoning), Fritos chili flavored chips and a lot of ranch-flavored products like chips and salad dressing have it. Little Caesar's too. I know that this is probably you entire diet (I lived on this stuff in school) but with a little watching you can find different brands that work for you. Plus, I also can't stress the importance of getting to a good neurologist (your doctor can recommend one)--I never would have made it through school otherwise. There is no need for you to suffer!! Hope this helped a little. Take care honey!!
Kate

Kate
Thursday, October 25, 2001 at 20:36:24



Dear Brittany: I am a migraine sufferer too, and I can relate to how you feel. First, you said that you've never been to a doctor for your headaches. Please ask your parents, guardian or school nurse to make an appointment for you to see a doctor to have these headaches checked out. Second, there are many foods that actually bring on headaches -- things like caffeine in coffee, soda, tea, chocolate, Excedrin, etc. Try cutting out as much caffeine from your diet that you can. Make a great effort to do this, please. Other foods that are bothersome are aged cheese, nuts, too much salt (like on potato chips, freetos, you know what I mean) Try to have as bland a diet as you can and see if your headaches improve a little. If you can, take up some relaxation exercises like yoga or deep breathing. This helps with having muscles around your neck and shoulders relax a little. I know what it is to feel lousey all the time Brittany, but try to help yourself just a bit by doing some of the things I suggested. Post back after a week and let me know how you are doing. Bye for now.

Joyce
Wednesday, October 24, 2001 at 19:24:00



Hey everyone! It has been a while since I said hi so here I am again! The Depo shot is finally wearing off (I called it my poison shot!!) and I am close to back to normal (level 4-7 daily) thank goodness! I guess it was worth a try, but it sure did throw me into a 3 month level 8-10 mirgaine! I was in out-patient every 10 days or so it was so bad! But, now it seems to be wearing out of my system and I am starting to feel a litle better. I started seeing a counselor a couple of weeks ago, and I definately recommend this to everyone. It helps to talk things out. You have to be careful of who you chose, though! I went and saw one last June and before she even knew my story, began blaming my mother and husband and all kinds of crap like that. It really scared me off of trying to get help that way. I am glad now that I tried again, because she is really great so far. More worried about treating the problem instead of playing the blame game. For anyone who does decide to try, happy hunting!! I guess all this talk about my headaches is bringing one on, so I am going to sign off for now!! Everyone take care and know that my mailbox is always open to chat, vent, exchange infor or whatever! I am always here!! Take care and be pain free!! For some reason, my homepage address is not showing on here, but for anyone who would like to visit my website, it is: http://myhometown.aol.com/thebelle1/myhomepage/profile.html

Bonnie Allen <TheBelle1@aol.com>
Wednesday, October 24, 2001 at 10:24:33



Wow! I can't believe all of the useful information I have found just by reading all of your entries. I was shocked to see how many people share the same hell as I do. I am 21 years old and started having migraines at age 10. I can remember my first one like it was yesterday. I had no idea what was wrong with me and just wanted to pain to stop. I just recovered from one of the worst last night. I was praying for it to stop and almost drug myself out of bed to go to the emergency room. I have yet to figure out what is causing these though. I had a CT scan, blood work, and even took a depression test. I was prescribed Midrin, but now it doesn't seem to work as quickly or as well.
I am currently on a no sugar diet (my doc thinks this will help) so I am giving it a chance. I wish everyday to figure out what causes these so I can be pain free. It is ruining my social life, my love life, and my working environment. I snap at people, have a short temper, get tired very easily and sometimes just fly off the handle. I never used to be like this and now my friends and co-workers say I am a completely different person. I am just so unhappy and tired of feeling bad. I also notice my headaches are worst around the start of my cycle and I am also on birth control.
I feel better to just get the emotions out and if anyone has any advice or would like to talk, please feel free to e-mail me anytime. Thank you and God Bless! :)

Lindsay <lindsaykaye@earthlink.net>
Monday, October 22, 2001 at 20:33:50



It's comforting and sad to see all these journal entries. I have suffered from migraines since I was 4 years old and I'm 29 now, nearing on 30. My mother and aunt also suffer from migraines, so at least I haven't felt too alone these past 25 years.

I've had nearly every kind ever documented. When I was 20 I had one that attacked my vision. The room kept getting darker and darker. I was scared to death. I didn't have a migraine at the time and didn't know what was going on. I thought I was going blind. Luckily I was in college at the time and my friend rushed me to the campus doctor. I explained what was happening and he said, "Ever heard of migraines?" Well of course I'd heard of them. They plagued me through my childhood at every after school activity, made people in high school think I was a hypochondriac, and basically made my life a living hell. "Well," he said somberly, "looks like you've graduated to adult migraines. Hope you have something to take, because I don't think you'll want to go out tonight."

From my experience I have learned migraines come in all pain levels. Some come as dull throbbing. Others are short and sharp as knives. Some last hours. Others last days or even weeks. The longer they last the crazier you begin to feel. Whether it's from whatever you take for the pain or from the pain itself. I've tried life with medication, life without medication and life with only over the counter drugs. I�ve tried exercise, no exercise, diet and meditation. I've had the vomiting kind (particularly when I was a kid), the auras, the numbing, blinding, tingling, you name it.

As much as I have learned about migraines over the years you would think I wouldn't be bothered about what others thought. I sometimes think part of the migraine is a little paranoia about what others think or are saying about that "sickly, weak woman� over there. These thoughts come up particularly when it is bad migraine, but not so bad that you don't notice others reactions. I know we'd all like to get out the syringe and give them the headache of a lifetime, but that's just not going to happen.

The best advice I can give is to find your method of dealing with the pain and recognizing it�s real and it�s part of who you are. Unfortunately, I don�t have any magic potions or remedies; I�m still searching for those and I hope all of you are too. If you�re a woman, there is a good change your migraines are directly linked to your cycle. I know mine are. I didn�t start the pill till I was 24 for fear of worse migraines. When I finally found the right dosage (the lowest possible) I discovered a little control over the migraines. For those who are teenagers out there you might want to consider a VERY low dosage birth control pill. It regulates your hormones and if your migraines are like mine and linked to those damn hormones, it may reduce the number of migraines you get each month.

Good luck to all of you. Think positively, someday we will find a cure to migraines.

Karin <selectinfo456@yahoo.com>
Monday, October 22, 2001 at 16:19:55



Hi, I am 14 yrs. old and I've been getting migraines every
since I was 12, and I hate it so much, because I play
basketball and I can't do anything when I get this migraine.
First, it starts out with just a little paine that I can
deal with, but then it just gets too much for me, and when I
get these I try my hardest not to cry and I'm always saying
to myself, "How come there's no medication for this thing."
So when I get migraines, I just go up to my room & lay in
the dark with no sound, and it always seems to get worst at
night. So while I'm up there, I have my trash can by my bed-
side waiting, it's like a routine.It's like, when I have these migraines I can't get up to walk anywhere,and I've never been
to the doctor or anything,and it's like when I'm in pain of
this no one cares, they don't come to ceck up on me or anything
and that's what makes it worst.
So i just felt like I should share this with you all.
God Bless!

Brit (Brittany)
Saturday, October 20, 2001 at 00:32:00



Hello to everyone..
I am new to this so let me tell you a bit about me, I am 26, a woman and in reasonably good health, though I admit I should probably excersice more. I have pretty much always gotten headaches.. sometimes headaches that would last for days.. weeks on end. I thought it was normal. Or that seeking help for the pain would in some way make me weak. *I do know NOW that this is foolishness before you all jump me ;-)* I had my first "migraine" or a headache so severe I could simply not function about a year ago. I don't recall what stimulated this headache .. only that it was severe.. I was in tears.. vomiting over and over.. holding my head.. nothing made it feel better. I tried Ibuprofen, tylenol, cold pacs, laying down, sitting up, stretching, drinking water.. finally ended up numbly sitting in a chair. holding my head until 6 am the next day praying for the pain to go. My husband came downstairs.. and he took one look at me and whisked me to the doctor. The headache had broken the bloodvessels in my eyes. (as I sit here writing this i have a constnat dull ache.. building in my head.. I wonder when I have this kind of headache with dread.. if it will blossom into full pain..)
I had my latest migraine last Friday. I went on a school field trip with my five year old son.. I felt my headache start around 10 am.. by noon while we were eating lunch i knew it was going to be bad.. I had no medicine with me and there was little water *we were at a farm*. Back on the bus I leaned my head back on the seat.. and thought about having to watch the three kindergardeners in my care.. Finally driving myself and my son home. my head seeming to pulse. At home I layed down and it simply worsened.. the vomiting began again.. and when the vomiting happens i just cry... Moveing hurts so much.. but you HAVE to vomit there is no way around it, so you shake and you pray and you just try to exist.. Worse.. I had to go to the bathroom.. and simply could not.. because pushing made my head feel as though it would literally rip open.. My husband got home and took me to the doctor.. They gave me a shot of Tordal. That really seemed to help me.. Thank god. They sent me home with Fiorinal and Midrin... The Fiorinal knocks me out..
I guess my point in writing all of this is only to just share it.. to tell someone. this happens to me.. It was so good to read other people's entries.. to know you are not alone.. That it isn't in your head. *bad pun*
So maybe someone else will read this.. and you won't feel so alone.
If you want to send me an email.. please feel free.
~Pumpkin

Pumpkin <pumpkin2575@yahoo.com>
Friday, October 19, 2001 at 17:22:01


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