On-Line Migraine Journal

The on-line migraine journal is intended to be an area for migraine sufferers to post their migraine histories and experiences.

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Please note: Posts are not automatically added to this journal. If you desire a prompt posting/response time, please use this site's discussion forum. Also, please try to use the discussion forum for question/response types of entries. The journal is intended to be a place to accumulate experiences and information, which can be used as a reference to those who wish to learn more about what it is like to be a migraine sufferer. Thanks!





Hello Everyone.. I'm having one of those days. I am 22 years old and have had migraines for several years. Lately they have come back with a vengence.I have been in the ER room and Urgent Care just last week. I just recently had an MRI done and everything came back normal. My Neurologist put me on Nadolol 80 MG tablets daily and Vicodin when needed. I have missed more work in the past 5 months than in the 3-4 years I have been here at my company. I just don't know what else to do. The Nadolol that I am on makes me sluggish and I feel like I can't catch my breath.. I'm so frustrated and out of solutions and answers. Anyone else have any thing I can do to cope. It is starting to interfere with my work, my marriage and my health big time.

Thanks,
Paula

Paula Wallar <Paula@schuamcherco.com>
Wednesday, May 30, 2001 at 15:23:13



Hello everyone. I am new to this site. I am not new to migraines and chronic daily headaches.
I am 38 and have had migraines since I was about 2. I have seen numerous specialists, drs and pain clinics. I have not had any relief from prevenative meds. I only have relief from opiad pain medications. I have had about 9 months that I had no migraine, it was during my second pregancy. otherwise nothing. I am always interested in hearing of treatments that have worked for others, who know some day I may find something that will help me. Both of my children suffer from migraines as well. my oldest didn't get them till she was about 15. my youngest started at about age 3. I would appreciate any advice on treatments you have.

Lee <leebones123@hotmail.com>
Friday, May 25, 2001 at 13:17:50



Having read this message board, I can empathise. I suffered from ocular migraines when I was very young; *I* think as a result of a bad bout of glandular fever. They disappered for many years through my teens, but were replaced by vertigo (not that 'oh I can't stand heights' thing; proper vertigo when you cannot stand up for even short periods of time without wanting to collapse. My doctor initially diagnosed anaemia..hmpf!) The migraines are now back with a vengeance, and when I don't have migraines I have severe tension headaches. It is a very tiring condition; you do *hope* that you'll have a migraine free day.

Vic <vodkabird@gurlmail.com>
Friday, May 25, 2001 at 11:36:49



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Please enter your name. :-)
Wednesday, May 23, 2001 at 14:02:40



Hi I am a Migrainer now for 12 plus yrs, I am at the end of my rope ...I have taken so many differant meds over the yrs and nothing works except aborters (pain management}I have had many neurologists over the past yrs and to no avail nothing has worked , of course they blame everything from depression to anything but what it could be,like the fact that 80% of my migraines are a week before ,during and after my periods..But what do I know it's only my body..I have been coming to this site for the past few yrs and at 3 am when nothing else works i come here to take my mind off the pain and at least know i'm not alone.....

Robin
I hope one day to be pain free, would love to hear from anyone who shares my pain!!!!!!

Robin <iluv2crab@aol.com>
Sunday, May 13, 2001 at 20:51:37



I am a 31 year old male who just started have these pains about a month ago. I was in denial, but apparently they're migraines. I have a bad headache that stays with me all the time 24/7, and then about 3-4 times a day BAM my head feels like it's trying to burst apart at the temples. I hold my head, often using a cold wet washcloth, and when the attack's subsided, I feel drained like I've been in a fight. The light and sounds are intensified. Sometimes the pain is so bad I am awakened by sounds before I even open my eyes. Within the past month my neurologist has prescribed Verapamil, Hydrocodone (for pain), Prednisone, Depakote, Amerge and Duradrin; nothing works. The website was listed when I was looking up migraines on the internet. I can't believe that there are so many people out there that know what this is like. And, from the research I've done, this isn't common in males in their thirties. But the biggest reassurance I have right now is that I am no longer in denial, but can accept this, and can know that there are so many other people out there who know what this kind of pain feels like. Co-workers and friends seem to think migraines are just bad headaches, but I've learned they are two totally different things, and I'm glad I'm not alone in knowing what this feels like.

Kevin Maze <kevinmaze1@aol.com>
Sunday, May 13, 2001 at 11:17:21



Hi
Its been awhile since i have posted. I have been haveing such a bad couple of mo.
I have had migraines most of my life,but usually when i was younger I could just lay down and they would go away and then after I had kids they would come and go but mostly I could get rid of them with a couple of tyneol and lay down. Now in the past 7 yrs. They have gotton worse. I have been on so many different meds (to many to mention) they will work for awhile and then I start getting them worse and have to try something different to get rid of these mig.I have went to several different neuro.Dr. But havent found one that will take the time to help me figure out what works. I just cant figure this out I am paying these dr money and noone seems to want to try to help . I dont mean to be going on and on but sometimes I just get so mad about the whole situation. I just get tired of missing work and laying in bed to get rid of my mig. And missing out on things with the family. Most of you understand this cuz youre going through the same thing. Thats why I like this wed site and think that its great that someone did this so that others could maybe find some help and just find some out there that know what they are going through and that they arent alone. Well hopefully soon I can find something to help. I go to see another neuro dr in june and maybe well see what he says. I can only hope well sorry for rambleing on . If anyone has any suggestions it would be greatly appreciated.
Take care all
May we all have a pain free day and week

terry <tstazzie@hotmail.com>
Friday, May 11, 2001 at 22:02:17



Hi

I have not visited the journal for a while. I do have some encouraging news to report: My doctor prescribed a preventive about 6 weeks ago and it seems to be helping, so far. It is NEURONTIN, an anti seizure med. I can't claim this is the total answer, but anything that helps for a while is OK with me! Good luck everyone!

Dee
Thursday, May 10, 2001 at 16:21:26



Hello One and All,
I am a 16 year old highschooler whos life revolves around one simple thoght, "Will this ever stop?" I was given the URL from a friend who was researching migraines for me because too much time spent on the computer gives me one. I am so relieved to read everyones posts. I thought I was the only one who got constant headaches. No one in my family believes me, but in truth, I spend most of my time with a headache. but i get the real doozies about 3 times a week, and with those, I get the whole kabang. I actually fainted with my last few in the bathroom. I get so unbelievably weak after one that I cry with frustration and relief that it is FINALLY over. I am too worried to stay at home by my self all day when I get a migraine so I force myself to go to school where I have to hide my pain from everyone or else be made fun of. I hate it when people say things like "it isn't THAT bad." my response to that is OH YES IT IS! My migraines started when I was 8 or 9, and haven't left me since. I was put through numerous tests a few years ago and diagnosed with migraines triggered by foods. Now, however, they are steadily worsening and I am scared and unsure of what this could mean. I have done the food records and food journals and migraine diets and NOTHING has helped. Any advice would be appreciated.

Jenna

Jenna Sanders <LittleJasha@hotmail.com>
Thursday, May 10, 2001 at 15:52:43



Hello,

I am a 15-year old boy, and I also have migraine. Not really severe, I only have it 4-6 times a year and I can reduce the pain with Paracetamol.
Here's my question: I have to make a report for school about a heritable disease. Migraine is also a heritable disease, so I chose that as my subject. The problem is that I can't find enough information about the inheritance. Can anyone mail me a site, where I can find information about this?

Thank you,
Jesper Moonen
E-mail: f.moonen@hccnet.nl

Jesper Moonen <f.moonen@hccnet.nl>
Wednesday, May 9, 2001 at 11:08:32



Hello all,

yesterday was a bad day for me, i hope it was better for all of u. Has anyone had any luck with depakote? That is what I am starting on now??? let me know... thanks ....

karen <mazierski@worldnet.att.net>
Wednesday, May 9, 2001 at 07:47:27



HI EVERYONE
IM JULIE DOES ANYONE ELSE OUT THERE GET NIGHT TIME HEADACHES? DO THEY GET WORSE AT NIGHT TIME,,PLEASE E=MAIL ME IF YOU DO IM AT JAW6659@AOL.COM AND MY NAME IS JULIE THANKS

JULIE <JAW6659@AOL.COM>
Tuesday, May 8, 2001 at 23:41:16



Hello Everyone,
I am a headache sufferer too. I am only 18 years old and i have bad migraines all the time. Just recently i have had a headache for 5 months straight. Nonstop i wake up with one and go to bed with one. The doctors do not know what to do or how to help. If anybody has any suggestions email me
Emily

Emily Witt <swooshie16@hotmail.com>
Monday, May 7, 2001 at 10:46:37



I came out of the bedroom in a sappy mood...so here I am. I can tell you all some horrid stories, but you've heard them all...and I'm too sick right now I just want to burst. All I want to say is I wish this would end. I know that's the same for all of us. But I'm all chatted out. It's all I talk about...you know. I had a few good last couple of days, which is amazing, and I do not want to be brought back into the circle.And it's pulling me in...I can feel it. and BAM...bad weeks ahead. I am just so tired...very tired. Thanks for the few minutes, and for the Journal, it's a God send. Shari

Shari <ilmlg4evr@aol.com>
Sunday, May 6, 2001 at 22:57:10



Hi everyone and I'm so amazed. I found your site today whilst surfing the net. I'm from London and I can't believe how many of you out there suffer so badly from the pain that migraines cause. I too am a sufferer. It started at around ll years and I'm in my forties now. When I was a child I would look at myself in the mirror each day and plead with myself that I wouldn't suffer again at school. I don't suffer as much as those whose stories I've read but It's around once or twice a month. The pain is so unbearable. But I almost feel ashamed that I have complained so much about it when some of you have this constantly. I can't walk or move when I get an attack. My vision is totally blurred during and a little while after. Strangley enough I get no warnings - I never had. I usually feel on top of the world the day before. Perhaps that is my warning. I've taken various medications but none work and they have made me feel so awful. I just cope with it now and accept it. I just can't win the battle so I shall have to live with it.

Good luck to all you out there and I shall be back to read all your messages.

Suz <AGKNiklas@aol.com>
Friday, May 4, 2001 at 11:51:52


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