Journal of Migraine Sufferers

I have been suffering with migraine headaches since I was 14. My sisters get and so did my grandmother. I would get them one every 4 years till I turned 23. I would get them a few times a year. At age 25 I have lived with a headache everyday since July 1996 it is now September 1997. I seen specialist that tell me it's only stress. I have tension and migraine headaches numbness in my right hand all the time that goes from mild to sever. I have numbness in my face tongue and the rest of my body when the headaches are at there worst. My quality of life has suffered severely and I want it to end. Do you have any advise. Are the doctors right that it's just stress. Or should I go see a new doctor and try again to find out what's wrong. You can e-mail me at

Just a note on what helps me when I have a sever migraine. Niacin the vitmins. My grandmother said it would help and it does. The only thing is that you should take a small amount because it makes you red and your skin gets hot. But it helps the blood flow.

Thank you


Whats up Ronda,

I've been getting migraines for about 4 years now. I have no idea whatsoever what brings them on, and i cant find a medicine that works or any treatment that helps. I'm currently in high school, and i missed so much school last year beacuse of them, that i had to repeat my junior year. School just started and the headaches seem to be getting worse. I already missed 5 days in 2 weeks, and if i miss another one i automatically fail for the semester. I would try to be in school with a migraine, but i just can't take it. Nowadays i get a migraine about 6-7 times a week (used to be like once or twice a day), and i have a headache all the time. Its hard for me to think alot because all this crap is just annoying the hell outa me all the time. I've tryed going to many doctors, a neurologist, and even a headache specialist. All they say is that it could be anything and all i can do is just try different medicines and see if they work. So far i've had no luck. I really hope i can find something that'll cure em or at least control em for the time being cuz if i dont i doubt i'll make it to any college and have any future. This page is a great idea and if you could send me anything on migrines i'd apreciate it.


.....update!!!nasal surgery worked....clusters are not migraines....check out "Sluder's syndrome", "rhino-genic/facial pain", "intranasal lidocaine", "septoplasty for correction of nasal septum", and the like by searching Medscape, Medline, PubMed, etc!!! Aug 18 surgery stopped my pain dead (see Aug Journal entry) me for more....JBD in Boise....

Dear Ronda,

FINALLY a place for migraine sufferes to go to for help. support, and information...God bless you!

I'm a 42 year old woman who began suffering migraines at the age of 19. My mother used to complain of "spliting headaches" from time to time throughout my childhood, but she didn't ever seek medical attention for it. Had she, I'm convinced she would have also been diagnosed with migraines. (She died at the age of 42 as a result of a massive stroke in the brain stem.)

After years of trying different drugs that range from Indoral to Prozac to Valium by various doctors, and undergoing a CAT scan as well as MRI's, I have found that no medicine can prevent future migraines. As a result, I take Excedrin at the onset of a bad headache. If that doesn't work, I then take a Fiorional #3. If that doesn't work, I have no choice but to go to the emergency room to have my "socks knocked off" with a shot of demoral and phengran...I sleep for 12-16 hours after the pain shot. I am also very bad about not going to the emergency room until I'm vomiting and often suffer from tunnel vision as well as light, noise, and movement intolerability.

It took me many years to find a doctor that would take my suffering seriously. I have found that because I am a woman, doctors don't listen as they listen to men (my husband is also a migraine suffere, tho his are less frequent as mine and don't emergency room treatments). I've had doctors tell me that my migraines are stress related, that I needed to seek psychiatric counseling/evaluation (which I did and was told that I am "well adjusted"), etc...The doctors have made me feel not only intimidated and ashamed to be a migraine sufferer, but extremely frustrated as well. I have felt like I've been treated as a "druggie" many, many times this past 22 years, and I deeply resent the professionals that have made me feel that way.

I had a complete hysterectomy when I was just 26 years old, and was immediately put on Estrogene therapy. I found that the oral estrogene aggravated my migraines. Therefore, I started estrogene in injection form and it has helped a lot. I can almost guarantee that I will suffer a migraine within the first week after receiving the IM estrogene, to the point that I don't' schedule events of importance during that first week after receiving my hormone shot. The effects of the estrogene far outweigh the day of suffering, or the effects of a pain shot - therefore I DO continue my estrogene therapy...

I am allergic to the new drug Imatrex, so my options are limited to treatment. I hope that you can reach doctors that do NOT understand that our pain is very, very real as well as very, very painful. I swear that I would rather be in labor than to have a migraine - that's how over powering the pain is. It's so dibilitating that I am bedridden for the entire day, and feel very fatigued the following day...

God bless you for you work in this area. I hope that you can make a difference for us who have to live with migraines... NOTE: my migraines are on the right side of my head

I typically have no warning that a migraine is coming on except for ringing in my ears, or "floating" silver and/or black spots in my eyes, but that is not always the case. I usually either an awakened in the night by the pain, or wake up with a "on the verge" of a migraine. Within 15-30 minutes on the onset, I get very nausiated, and vomit if I don't use a phenegran suppository to help control the nausia. I often have tunnel vision, but not always.

Hi Ronda!

I got my first migrane last Wednesday. It started with what I think is called an aura, which went away in about 20 minutes and 20 minutes after it went away the headache began. It started as throbbing pain behind my left eye, which grew in intensity until I ended up vomitting. I took Tylenol with no results. The only thing I could do was sleep. I couldn't even talk seemed like I wasn't making any sense when I tried to tell my husband what was going on. I couldn't even remember my boss's phone number to call in to work sick. My husband had to do it for me. After twelve hours of agony I was finally able to get out of bed and eat something. Shortly after that I got diarrhea. I woke up the next morning with my head still throbbing. I ended up staying home again that day and again all I could do was sleep. I was dizzy and the pounding never ceased. My neck and upper back muscles also started to tighten up. Friday morning I had had enough. I went to my GP and he diagnosed me with a classic migrane and gave me a shot of Imitrex. Which took the migrane away for about 20 hours. I woke up Saturday morning and my neck was still tense. Same thing Sunday, and Monday and Tuesday and Wednesday. Again, I had enough and called the doctor. I went back today and he told me that I have a tension headache brought on by the migrane and gave me a prescription for muscle relaxers. I still have a prescription for Imitrex tablets that I have to get filled. He gave me a sample tablet and I took that on Tuesday night. It doesn't have as strong an effect as the injection did. It made my neck muscles tense, my jaw felt like it was going to lock shut, and it did make me sick to my stomach (both injection and pill form). It also made the inside of my skull feel as if it were on fire, more so in the injectable form. My Aunt used to get migranes. She is the only one in my family that I know of that did. I'm 29 years old and have no idea why this headache started. I got up and had a cup of coffee just like I've done 1000 times before. I have not a clue as to why or what triggered this migrane. Thanks for listening!


---Joy Krieger joyk@vnet.IBM.COM

Dear Ronda, Hello. What a wonderful page you have! Thanks and I hope you keep it going. I previously wrote to you about my severe migraines. I have had them all my life, for about 40 years now. They seem to get worse each year and I get many each month. My neurologist has been very supportive and likes to try out new medicines on me. I am desperate for anything that may work. The latest is Lithium. It is supposed to prevent migraines, or at least reduce the frequency of them. Does anyone have Ýmore information on this for me? I'd love to hear if it worked on the migraines. Also, I have been taking Imitrex spray, and it works well. For me it takes about 45 minutes to 1 hour for complete relief. Take care and feel free to e-mail me.


I found that although traditional medicine has some offerings, particularly the effective Immigran, nothing was particularly good at prophylactic (preventative) approaches.

Through a lot of reading, and self discovery, I found an excellent personal cure (if that word applies) through melatonin.

If you want to trial this for yourself, email me for information.

I would like only to correspond with people who are prepared to try the program.

I really need to have feedback on a regular basis to enable me and others to judge the results.

It gave me the first real relief in over 20 years, so it is worthwhile. I also belive that the results tie in with some of the clues other sufferers have reported, such as the daylight length link.

If you want to take a serious try at resolving your condition, email me.

I would particularly like to hear from any endocrinologists who want to discuss the matter.

This is a true story. My mane is Brad Yurk, I'm 12, and one day I woke up with a headache sooo bad that I could barely concentrate on what my parents and brother said. I tried taking Asprin, Tylenol, Advil, and so on. None of them worked in the least bit. I had no clue what to do so I asked my parents and brother what they thought I should do, since I could barely understand them I thought they agreed that I should try soaking my head under water. Well I found out I was wrong oh so wrong. What my brother said is that I should try was taking 6 Advil at one time(he suggested that so I would overdose). I decided not to. What I decided to do was to take a nice soothing bubble bath in our whirlpool. Big mistake, the whirlpool made my headache about 10 times worse. i got so sick of life that I went to sleep for about 2 days. The end