Journal of Migraine Sufferers

JANA, I know that this is not the correct place to address this. I don't seem to have anyother choice. The email that you recieved, told you about a potential virus. For the rest of you, if you get an email that says,"Open:Very Cool:)" do not open it as it contains a virus. The email that was forwarded to you Jana, did not contain anything but tolet you know what the email "subject" would be and not to open it. You have caused me great distress what you did this evening and also for the other person that was kind enough to send out the warning. You apparently didn't read the email closely or none of this would have taken place. I tried to apologize to the other person and let them know that I was sorry this took up so much of their time but it was very rude of you to block mail from us when you asked for so much help about the virus. In trying to help you, you got scared and took the wrong action. I understand and am sorry that I had to come to this journal to address this problem, but there was no other way.
Tx USA - Date: 11/10/98 (Tue) Time: 01:08:31 AM
Hi. This is my first time being on the Internet. I find that this is a very information page. I would like to have contact with women who have migraines who are also nursing. I have a four month old and so far I have had six migraines. Since I am nursing, I am unable to take my Fiornal-C. How have other women coped with the pain? I have tried feverfew without success, so that natural alternative is out for me. Any suggestions? Thank you. Marta.
Marta <>
Port Coquitlam, BC Canada - Date: 11/09/98 (Mon) Time: 11:15:12 PM
Hello again, all...I was just re-reading my entry along with a number of others - I hope that I didn't come off as extremely negative with the "spouse" comment. While there is definately frustration between us, my husband does do his best to put up with me. Do any of you just feel like you are a huge burden on everyone? That's how I felt when I was working, now that I am off work, I just sit around and feel sorry for myself. I have tried hobbies, even interacting with my son's class - but after just a few minutes with the children I get these awful cold sweats and hot flashes. I seem to get them at night also - does anyone else? I will wake up around 3am - drenched!! Also, I would love to hear about anyone's experience with pain clinics elief centers. I am going to one in a week or so and would like to know what I am going into. Thank God for all of you, I no longer feel so worthless and alone. (This site actually made me cry - but don't tell anyone! :))
Samantha <>
Sunnyvale, CA USA - Date: 11/09/98 (Mon) Time: 09:05:40 PM
I just posted a entry, but now it doesn't seem to show up. Humm?? Please let me know if you see my entry that is supposed to be in here right before this posting. Thanks!! Jana
Jana <>
Atlanta, GA USA - Date: 11/09/98 (Mon) Time: 08:34:00 PM
Hi there again to all my migraine buds! Jana here again with yet another migraine that has ruined my day! I am in the last stage/phase of my migraine that started at 3am in the morning. I am better becuz usually when I get into my "rage" mood it means the migraine has almost finished running its course. Does anyone else experience this where you start to get really mad and upset with a rage in the last stage of the migraine? I wonder why this happens? Perhaps the reason being is the vessels in the head are shrinking back to normal and the chemistry is switching back to normal? What do you think?? I have the responsibility of taking my husband to work everyday being he has Cervical Dystonia (Spasmodic Torticollos) and also Multiple Sclerosis; therefore, he cannot drive and gave up his license. He always has to call in to work and miss a day of pay which is quite a bit whenever I hava a migraine..a bad one. Well, ALL migraines are bad as you know, but I mean the ones that are *really* bad! Just like today he almost had to call in but luckily he was able to call a taxi and they took him to work. That gets very expensive, if you know what I mean? One way to work is $25.00, plus the tip. I want to return to work so incredibly bad, but everytime I think I am getting better my damn head keeps reminding me of these debilitating migraines that prevent me from even trying to resume working. I went thru a home detox back in August to detox from Fiorinal, Tylenol#4, Percocets, etc..Today I just had to take some Tylenol#4's (6 for a grand total for just today)! Also, I have taken 6 Vicodins, 3 Phenergen IM shots for the nausea, DHE-45 IM. It seems like no matter what the heck I take whenever I am in such excruitiating pain NOTHING works!! This is so damn frustrating to say the least! I hope everyone else is doing better than I am right now. It sure is comforting to know I can open this journal up for support with people that *truly* understand the pain we all go through. Too bad so many others that don't have migraines just simply do not understand! I am fixing to go to court to get my divorce decree modified in order to seek joint or sole custody of my kids and I hope to God the judge will not discriminate against me becuz of these migraines. My ex husband has the kids now becuz when we divorced back in '89 I was so sick of the migraines that I couldn't even take care of my family!! Also, I wonder if the court will order a drug test on me to see what meds I am taking, but being they are prescribed by a MD and they are legal do you think that will be held against me? I only live less than a mile from my kids, so I feel pretty confident in getting at least joint custody. I am so sure my ex will try to throw as many obstacles at me as he possibly can and I am sure the main topic from his attorney will be these damn migraines and how I should not get custody granted to me. Has anyone else been in this situation before? If so, please email me and let me know how it went with you and any/all tips you can give me would be greatly appreciated! Thanks!! :) Btw, I never even went to court for our divorce, in fact, I just signed over my kids to my ex being I felt he could provide for them better than I and give them stability becuz I never knew if I would be able to get a full paycheck becuz of having to be out with the migraines. I just hope and pray I can at least get joint custody! Wish me luck! Please email me and let me know what you think and any ideas that may be of help for me. Take care and be well!!!! ~Jana~
Jana <>
Atlanta, GA USA - Date: 11/09/98 (Mon) Time: 08:30:10 PM
I have had migraines since I was 5 and I am now 30. I have avoided going to the doctor because I had no insurance. My migraines center on the right side and cause numbness and loss of vision. I was in a car accident and they did a CT scan and found nothing. I know that anything remotely associated with mold will set me off. So I avoid Cheese, nuts ect.... Its nice to know that there is a place where others understand the pain. Right now I take 800mg of Ibuprophen and a vicodin to help dull the pain but as time goes on it keeps getting worse. I am about ready to ask a doctor for help. Thanks for listening. DW
Denise Willms <>
Medford, OR USA - Date: 11/09/98 (Mon) Time: 04:46:56 PM
Hello Fellow Sufferers: I have had migraine since I was five years old. I am now 40. I've been hospitalized twice, have tried most everything. I'm currently on my fourth headache clinic. Warning! Do not take the Fiorinal train. It is extremely addictive and the rebound headaches (which also quickly escalate with aspirin, especially Excedrin Migraine) are worse than the original migraines. Get off it as soon as possible. Imitrex helps, but I was recently told that can cause rebound headaches. Any news out there? I've tried inderal, prozac, depakote,tofranil, librium, in varying amounts and combos. My newest is "VIVACTIN". Any experiences? Also I am off all pain medication. The first two days were excruciating, but it is now day 4 and I am better. Still wary, we shall see. People do not realize how totally debilitating migraine is. It has made my life unlivable and I hope this new doctor helps. My new headache clinic I am trying is in Oregon at the OHSU. I've tried The Cleveland Clinic, Minnesota, and Mt. Sinai in NYC. Any questions or answers please be in touch. Here's to a headache free world!
Patricia <>
NYC, NY USA - Date: 11/09/98 (Mon) Time: 02:32:25 PM