Like another sufferer who wrote in July, I sometimes experience a strange hyper-sexuality, even though I am in intense pain. The one thing I have that I don't see in other accounts, is my mind RACES during the attacks. And the more desperately I try to turn my mind off, the worse it gets. It's as if I'm on some kind of speed, and I think about dozens of subjects all at once. Usually, a musical phrase from some song I may have heard earlier in the day (I'm a musician), repeats itself over and over in my head ad infinitum. It's like a record playing with a skip. Then the vomiting just makes it worse. The ONLY escape is sleep, but with my mind in high gear, coupled with the pain, sleep is impossible. Last week, I had it for 19 hours, and still couldn't sleep for several hours after that. After waking the pain is always gone, and sometimes I feel a mild euphoria. However, sometimes I am totally wiped out the next day. Interestingly, they have occurred on 3 of the last 4 Thursdays. Who knows why. Went to the doctor this week for MRI and MRA (normal), and got Imitrex. Haven't tried it yet - waiting for the next attack. Praying it works, but worried about side effects. Sometimes I can ward one off early by taking 1 or 2 Vanquish tablets. Ice also helps, as does intense massage of the skull.
Happy to find this page, and my heart goes out to all of you.
I went to my family physician first with symptoms very similar to carpal tunel and he suspected the same until we got the test results. I was then sent to a neurologist new to our area, and thought I was finally going to get some relief. Her favorite thing to treat was headaches. She didn't treat the pain, she looked for the cause of the pain. Since seizure disorder was suspected, I am now taking Neurontin 800mg daily. The migraines have not stopped, but they don't seem to last as long as they did. I still occasionally get to the point of total silence and darkness in order to survive the attacks. There have been many times that I prayed God would just let me die so the pain would end. I've had the ice-pick kind that last a split second, the kind that lasts for several hours, and the kind that last for days and even weeks. With the neurontin, I was able to spend 2 days in a boat on a lake without a headache and that would have been impossible before. I know that it is helping, but I don't like the side-effects. I get disoriented, can't remember things, and am dizzy alot whether I take it with or without food. The numbness, tingling and pain in my left arm radiates from fingers to shoulder, staying mostly in the forearm and hand. My neurologist is re-locating, so I am back to looking for a doctor who can treat me for this debilitating condition without treating me like I'm some psycho looking for drugs and attention. I don't like the way I feel when I am medicated, and with a husband and 3 children, I don't need any more attention. I would like to hear from those of you who have similar conditions to mine or anyone who has suggestions for help. You may e-mail me at firstname.lastname@example.org
I first started having migraines at 16 they started as very low grade and increased to major pain. I would go to ER for a shot of demoral, and a talk about how I could control the pain level.(doctor said its all in your head.) I have been on several meds nothing helps completly. I've learned to dealwith these migraines by going to bed.
I took stadol,imtrex, depkote, evail& anything else I thought might help so far nothing has really helped. I have a strong family history of migraines.